The premier source of information
about living independently with a ventilator.
International Ventilator Users Network's mission
is to enhance the lives and independence of
home ventilator users and polio survivors through
education, advocacy, research and networking.
Become a Member or Renew Now!
Download a PDF order form to print and return by mail,
or call 314-534-0475.
Hours: 9:00 am–1:00 pm; 3:00–4:30 pm CDT, Monday-Friday
This week at IVUN ...
Asking for your help: Have you flown lately while using your ventilator? If so, please report your experiences to IVUN. IVUN is also looking for volunteers to call the airlines (numbers are listed on this link) to obtain their approved list. All information gathered will be posted on www.ventusers.org. If you want to help, email info@ventusers.org.
Explore information for home ventilator users,
families and health professionals.
Access to IVUN publications – Ventilator-Assisted Living, Information about Ventilator-Assisted Living, Home Ventilator Guide (updated 1-22-10)
CD of Program Booklets Now Available:
Daily program booklets (Thursday–60 pgs; Friday–98 pgs; Saturday–70 pgs) from PHI’s 10th International Conference: Living with Polio in the 21st Century are now available. In PDF format on a single CD, the files contain abstracts and handouts.
Order form & domestic pricing information. Print and mail.
Order form & international pricing information. Print and mail
Access to video demonstrations:
Frog Breathing (glossopharyngeal breathing)
Lung Volume Recruitment (LVG) and glossopharyngeal breathing (GPB)
Mouthpiece ventilation – Click on Program Library/Programs by Titles/Non-invasive Assisted Breathing
Investigate and actively support current issues affecting the lives
of home ventilator users.
Support IVUN initiatives, other advocacy organizations and connect with other advocacy resources.
New Air Carriers Access Act and important information about flying with
breathing machine. Review the FAQs from the Department of Transportation.
Air Carriers with Medical Policies with direct links to the airlines' respective policies.
Learn about The Research Fund of PHI/IVUN and opportunities to participate
in research.
THE SIXTH RESEARCH GRANT: CALL FOR PROPOSALS
THE FIFTH AWARD (2009) – $25,000 was awarded to team from University of
Insubria, Varese, Italy.
Find health professionals, support groups; connect at conferences;
receive and/or offer help.
Link to 500 entries in IVUN's Resource Directory for Ventilator-Assisted Living (updated 1-12-10); find out about home ventilator users meetings around the world, email requests or offers of help to other ventilator users. PLVs discontinued as of 12/13/2009
This site updated 2-8-10
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