IVUN Board Members & Committees
International Ventilator Users Network, an affiliate of Post-Polio Health International, is governed by a Board of Directors and has a paid staff of three.
Honorary Board Members are recognized for their contributions and loyalty to IVUN and to the disability community at large. (These members do not have voting privileges and are not entitled to participate in meetings or other activities of the directors.)
The Medical Advisory Committee is composed of open-minded health care professionals who are experts in their field and who support IVUN's philosophy about independent living. Members must be knowledgeable about the late effects of polio and demonstrate the ability to think analytically and strategically in advising IVUN on medical matters. The chair will be a Board member and is responsible for communications between the committee and the Board. The committee composition will represent health care professionals in diverse areas of specialization (e.g., physiatry, pulmonology, occupational therapy) and a balance of backgrounds (e.g., geographic, cultural, gender)
The Consumer Advisory Committee is composed of individuals with physical disabilities who support IVUN's philosophy about independent living. Members have a professional or personal background in disability advocacy and assist IVUN in analyzing disability issues.
Board of Directors
William G. Stothers, President/Chairperson
The Center for an Accessible Society, San Diego, California
Lawrence (Larry) C. Becker, PhD (retired), Vice President
Fellow of Hollins University, Professor of Philosophy Emeritus, College of WIlliam and Mary,
Roanoke, Virginia
Marny K. Eulberg, MD (retired), Secretary
Family Practice Medicine,
Westminster, Colorado
Saul J. Morse, Treasurer
Legal Counsel, Brown Hay & Stephens, Springfield, Illinois
Richard (Rich) W. Hokamp, Assistant Treasurer
Attorney-At-Law, Saint Louis, Missouri
Brenda Jo Butka, MD
Respiratory Care & Pulmonology, Vanderbilt Stallworth Rehabilitation Hospital,
Nashville, Tennessee
Selma Harrison Calmes, MD (retired)
Anesthesiology Dept, Olive View/UCLA Medical Center,
Sylmar, California
Frederick M. Maynard, MD (retired)
Physical Medicine and Rehabilitation,
Marquette, Michigan
Allison "Sunny" Roller, MA (retired)
University of Michigan Health System.
Ann Arbor, Michigan
Susan Suter (retired)
Office of Employment Support Programs, Social Security Administration,
Urbana, Illinois
Martin B. Wice, MD
Medical Director, Department of Rehabilitation Medicine,
Saint Louis, Missouri
Daniel J. Wilson, PhD
Professor of History, Muhlenberg College,
Allentown, Pennsylvania
Honorary Board
Augusta S. Alba, MD
Coler Goldwater Specialty Hospital and Nursing Facility, Roosevelt Island, New York
Henry Betts, MD
Rehabilitation Institute of Chicago, Chicago, Illinois
Allen I. Goldberg, MD, MM, FAAP, FACPE, FCCP
Pediatric Home Health, Loyola University Medical Center (retired), Chicago, Illinois
Lauro S. Halstead, MD
National Rehabilitation Hospital, Washington, DC
Jacquelin Perry, MD, DSc (Hon)
Medical Consultant, Post-Polio Service, Rancho Los Amigos National Rehabilitation Center, Downey, California
Anna Eleanor Roosevelt
Community and Education Relations, The Boeing Company, Chicago, Illinois
Maurice Sonnenberg
New York, New York
Max J. Starkloff
President, The Starkloff Disability Institute, Saint Louis, Missouri
Stanley K. Yarnell, MD
Physical Medicine and Rehabilitation (retired), San Francisco, California
IVUN Medical Advisory Committee
John R. Bach, MD
University Hospital, Newark, New Jersey
Joshua Benditt, MD, FCCP
University of Washington Medical Center, Seattle, Washington
Louie J. Boitano, MS, RRT, RPFT
University of Washington Medical Center, Seattle, Washington
Brenda Jo Butka, MD
Vanderbilt Stallworth Rehabilitation Hospital, Nashville, Tennessee
Selma H. Calmes, MD
Chairman & Professor, Olive View/UCLA Medical Center, Sylmar, California
Karen Dikeman, MA, CCC-SLP
Silvercrest Center for Nursing & Rehabilitation, Jamaica, New York
Peter C. Gay, MD, FCCP
Mayo Clinic/Rochester, Rochester, Minnesota
Diana Guth, BA, RRT
Home Respiratory Care, Los Angeles, California
Nicholas S. Hill, MD
Tufts-New England Medical Center, Boston, Massachusetts
Virginia Simson Nelson, MD, MPH
University of Michigan Health System, Ann Arbor, Michigan
Aroonwan Preutthipan, MD, FCCP
Ramathibodi Hospital, Mahidol University, Bangkok, Thailand
Jesper Qvist, MD
The Neuroscience Centre, Copenhagen, Denmark
Oscar A. Schwartz, MD, FCCP, FAASM
Advantage Pulmonary & Sleep Medicine, Saint Louis, Missouri
Anita K. Simonds, MD, FRCP
Royal Brompton & Harefield NHS Trust, London, England
IVUN's Consumer Advisory Committee (February 2010)
Lawrence C. Becker, PhD
Fellow of Hollins University
Roanoke, Virginia
Sedation for Surgery
Take Charge, Not Chances: In Practice
Polio Survivors in the US, 1915-2000: Age Distribution Data
Linda L. Bieniek, CEAP (retired)
La Grange, Illinois , USA
Treatment Approach Options Chart
Pursuing Therapeutic Resources to Improve Your Health
Nancy Baldwin Carter, BA, M Ed Psych
Founder, Nebraska Polio Survivors Association
Omaha , Nebraska
My Journey through the Basics of Post-Polio Breathing Problems
Surgery: Another Point of View
Richard L. Daggett
Polio Survivors Association
Downey, California
How My Vent and I Underwent Radiation Therapy
Laura Hershey
activist, writer, poet and consultant
Englewood, Colorado
www.LauraHershey.com
Audrey J. King, MA
Don Mills , Ontario , Canada
Ventilator Users' Perspectives on the Important Elements of Health-Related Quality of Life,
Ventilator Users in the Air: Traveling to Japan
Improving Long-term Respiratory Care in Ontario, Canada
Deshae E. Lott, PhD
Louisiana State University Shreveport
Bossier City , Louisiana
www.deshae.net
His Choice: My Life; Her Life: My Caregiving
IVUN Joins Those Studying Sexual Activity and Chronic Illness
No Way Out But In: Responding Positively to Chaos with Forgiveness and Grief
Elizabeth Martin
Stirling, Scotland
www.spinal.co.uk/page/Elizabeth-Martin
Destination Barcelona ... or Not
Bill Miller
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Leesburg, Florida
http://powerwheelchairusers.blogspot.com
www.ikanbowler.com
www.lookmomnohands.net
Adolf Ratzka
Stockholm, Sweden
www.independentliving.org
Ventilator Users in the Air: Traveling to Japan
Ventilator Users and Meditation
Barbara Rogers,
President & CEO, National Emphysema/COPD Association
President, Respiratory Resources, Inc
New York, New York
www.necaweb.org
Sandra Stuban, RN, MSN, Lieutenant Colonel (Retired, US Army)
Fairfax, Virginia
The Butcher's Daughter: The Story of an Army Nurse with ALS
“Advice From the Trenches” in ALS Association's monthly newsletter The Exchange. (archived at http://www.alsa.org/exchange/)
How Often Should Ventilator Circuits Be Changed?