Past Issues of
Ventilator-Assisted Living©
(listed by issue and date)
ISSN 1066-534X (formerly IVUN News)
©Copyright through 2009 Post-Polio Health International
Past issues from 2000-2009 (Vol. 14-23) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.
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2009
Winter 2009, Vol. 23, No. 4
Home Mechanical Ventilation in Finland
Breathing and Sleep Symposium | From Around the Network
Ask the Experts | Help Eliminate Competitive Bidding
Fall 2009, Vol. 23, No. 3
Ave atque Vale! Remembering Susan Armbrecht, 1939-2009
No Way Out But In: Responding Positively to Chaos with Forgiveness and Grief
Improving Long-term Respiratory Care in Ontario, Canada | References
My Experience with Setting Up Day-time Ventilation | From Around the Network
Adolf Ratzka Receives European Citizen Award
Summer 2009, Vol. 23, No. 2
Destination Barcelona ... or Not | Letters | New Regulations Affect Ventilator Users Who Fly
From Around the Network | How Often Should Tracheostomy Tubes Be Changed?
How Often Should Ventilator Circuits Be Changed? | Living with Polio in the 21st Century
Spring 2009, Vol. 23, No. 1
A Different Kind of Booster | Riding Out Hurricane Ike & Energy Backup
Hospital Experiences and Observations | “My Favorite Mask” | From Around the Network
2008
Winter 2008, Vol. 22, No. 4
Crafting in Cardboard | Ventilator Users and Meditation | Bilevel or volume-cycled ventilation? (not online)
From Around the Network | My Favorite Masks | Forrest Bird Honored
Updates on the ADA, the UN Convention on the Rights of Persons with Disabilities,
and the Homebound Demonstration Project
Fall 2008, Vol. 22, No. 3
Surpassing the Teenage Trach Years | Watercolors are My Joy of Life
Take Charge, Not Chances | Frequently Asked Questions | From Around the Network
Summer 2008, Vol. 22, No. 2
The Fight for Home Care Ventilation in Brazil | Living with a Ventilator in Brazil
Pompe Disease Treatment | A Life Less Ordinary | My Favorite Mask: FlexiFit™ 407 (not online)
Competitive Bidding: What It May Mean for You | From Around the Network (not online)
IVUN and PHI announce the 10th International Conference
Spring 2008, Vol. 22, No. 1
Needed: Independent Living for Ashly | Inside This Issue | Truly Personal Attendant Care
Take Charge, Not Chances: In Practice | From Around the Network | 2008 Camps for Ventilator-Assisted Kids
The Pandemic Ventilator Project | Calendar | Call for Proposals: IVUN's Fifth Research Grant | Meet Our Sponsors
2007
Winter 2007, Vol. 21, No. 4
Take Charge, Not Chances, Introduction | Take Charge, Not Chances, documents
Fall 2007, Vol. 21, No. 3
Air Travel to India | Renting your vent? What would you do if you suddenly owned it?
A ventilator user's impressions of a recent hmv meeting
Celebrating its 20th year, IVUN announces its new website | Take Charge, Not Chances
Summer 2007, Vol. 21, No. 2
Safety Issue Generates Practical Solutions |
Social and Ethical Implications of Long-term Ventilation for Men with Muscular Dystrophy
Two survivors present solutions for addressing muscle respiratory weakness due to prior polio
Recent readers’ survey. A few things we learned
Spring 2007, Vol. 21, No. 1
How My Vent and I Underwent Radiation Therapy | Update: Medicare Reimbursement Changes Affect Vent Users
Independence with a Ventilator: An Interview with Mark Boatman | From Around the Network
2007 Camps for Ventilator-Assisted Children | 2007 Conferences
Noninvasive and Home Mechanical Ventilation: ICU and Beyond
2006
Winter 2006, Vol. 20, No. 4
The Research Fund: Final Report – Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis
Pennsylvania Vent Camp at Camp Victory | IVUN Joins Those Studying Sexual Activity and Chronic Illness
Networking: DPS System Article Clarified
IVUN's 2007 Resource Directory for Ventilator-Assisted Living is now online
Fall 2006, Vol. 20, No. 3
The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System
What Is Telehealth? | IVUN Members Consider Telehealth
Request for Increased Funding for Veterans Using Home Ventilators
Networking | IVUN Membership Benefits and Form; Get Ready for Another Flu Season
Summer 2006, Vol. 20, No. 2
Living with ALS | Maximizing Your Support and Independence through Attendant Care
IVUN's New Medical Advisory Committee Shares Its Views | Enjoying the Arts: Expect the Unexpected
Update on the Ventilator Users' Medical Emergency (VUME) Project
Networking: Ventilator Donation to Thai Hospital; Registries; Calendar 2006 | IVUN Membership Application
Reminder: The Research Fund Proposal Deadline
Spring 2006, Vol. 20, No. 1
Escaping Hurricanes Katrina and Rita | Medicare Changes Payment for RADs
Ventilator Users' Medical Emergency (VUME) Project Under Way | Emergency Respite Care
An Alternative to a Trach Tube | Vaccine News
New Equipment: ComfortLite™ 2 Nasal Mask; DC to DC Power Source for Pulmonetic Systems Ventilators
2005
Winter 2005, Vol. 19, No. 4
Adopting Children with Special Needs Vaccine News | Care of a Tracheostomy
Current Threats to Ventilator Users in Cost-Cutting Proposals from Medicaid and
Other Medical Insurance: A Resolution
Funds to Address Problems Vent Users Face during Medical Emergencies
Call for Proposals for a 2007 Award of $25,000 (The Research Fund) | The Research Fund: Preliminary Report
Earlier Use of Noninvasive Ventilation May Prolong Survival
New Masks | Home Ventilator Guide | Fischer Steps Down
In Memoriam: Edward Anthony "Tony" Oppenheimer, MD, FCCP
Fall 2005, Vol. 19, No. 3
Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment
Swedish Respiratory Unit for Ventilator-Assisted Children | Masks, Part II: Noninvasive Interfaces
His Choice: My Life | Her Life: My Caregiving
Equipment: PLV Continuum by Respironics, Inc.
Travel: Special Federal Aviation Regulation (SFAR)
Summer 2005, Vol. 19, No. 2
Living on Your Own in College and Beyond
The Experiences of Families with Ventilator-Assisted Children at Home
Masks: Obtaining a Good Fit, Part I | Home Is Best | Ventilator Conference in Lyon
Equipment and Interfaces | Potpourri
Spring 2005, Vol. 19, No. 1
A Treehouse for Everyone | Extra Security During Emergencies | Life as a Teenager ... with a Ventilator
The Development of RespiteMatch.com |
Potpourri: Amyotrophic Lateral Sclerosis; Muscular Dystrophy; Polio; Spinal Muscular Atrophy
Independent Living | An Oral Mask Alternative: The Oracle
2004
Winter 2004, Vol. 18, No. 4
The Ventilator Boat: Will It Float? | My Dream: Scuba Diving!
PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation
The Pneumobelt: Part of My Noninvasive Ventilation System | Planning for Elective Surgery
Home Care for Children in Holland: The Story of Anouk
Potpourri: John J. Downes, MD, FCCP; Over 5 Years Club; Virginia Nelson, MD;
CILB (Citizens for Independence in Living and Breathing); Paul Longmore, PhD
Strategies for Living Well: Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living
New Interfaces: Nasal Pillows | New Equipment
Fall 2004, Vol. 18, No. 3
Vent Kids of Alabama Support Group | Sidebar: "Care of the child with a chronic tracheostomy"
From independent living to a nursing home ... and back? | Sidebar: Respiratory care and Duchenne muscular dystrophy
Ventilator Users in the Air: Traveling to Japan | Japanese Ventilator Users Network's Successful Symposia
New Interfaces: Nasal Pillows | New Equipment
Summer 2004, Vol. 18, No. 2
Quality of Life: Profiles of Living with ALS | Sidebars: What is ALS? More about ALS
Home Mechanical Ventilation in Brazil Revisited | Homebound Exception Demonstration
Retrofitting Ventilators for Power Chairs | Preparing for a Respiratory Emergency
In Memoriam: Ira Holland, 1939-2004 | Respironics and IVUN's Ventilatory Equipment Exchange
Potpourri: ResLink from ResMed; OSA/CPAP users; Medicaid Waivers; Toll-Free Hotline for Airline Disability-Related Problems; The Association for Respiratory Technicians and Physiologists; Chin-Neck Bandage; Rolling On: The Story of the Amazing Gary McPherson
Letter to the Editor from Jeannette Hoitt, PhD and Robert Banzett, PhD, University of Arizona
Spring 2004, Vol. 18, No. 1
Passy-Muir Speaking Valve: Improving Voice in Children and So Much More
Sidebar: How the Passy-Muir Valve Works | Ventilator Backup: Are You Prepared?
Aging and Respiratory Function | Transition: From Middle Age to Elderly
Arizona Respiratory Center Receives Grant | ALS Respiratory Care Resources
IVUN Ventilatory Equipment Exchange | New Interface: The ComfortLite from Respironics
2003
Winter 2003, Vol. 17, No. 4
A Change of Plans | Respiratory Effects of Common Medications | Noninvasive Ventilation: A History of My Life
Ninth International Noninvasive Ventilation Conference: "From the ICU to Home," October 23-25, 2003, Orlando, Florida
Intimacy and Sexuality and Long-term Mechanical Ventilation: Breathing Intimacy into Our Lives
Assisted Living for Ventilator Users | Tracheostomy Tubes |
Sidebars: No More Inner Cannulas, Talking with Tracheostomy Ventilation
New Nasal Masks: Mirage Activa, ComfortGel, DeVilbiss FlexAire, Fisher & Paykel's HC405
Fall 2003, Vol. 17, No. 3
Noninvasive to Trach Ventilation ... and Back Again | Sedation for Surgery
Traveling with Technology-Assisted Children | Air Travel and Ventilator Users | Journal Articles
New Equipment & Interfaces: Nippy 3; ComfortFull Full Face Mask, V.I.P. 7500 Series Oro-Nasal Vmask, ALIZES nasal CPAP/bilevel mask
Trach Necklaces and Scarves
Summer 2003, Vol. 17, No. 2
Welcome to Ventilator-Assisted Living | Getting Used to Noninvasive Bilevel Pressure Ventilation
Adolescence: Transitioning from Pediatric to Adult Care | DMD Pioneers
Happily Using Bilevel Pressure Ventilation | Home Mechanical Ventilation in the Netherlands
Potpourri: Equipment Problems; Living with ALS | Letters to the Editor
Spring 2003, Vol. 17, No. 1
A Classic Case of Hypoventilation | What Is Hypoventilation? | Which Ventilator? Who Decides? | Home or Institution?
Humidification | Treating Bronchitis with H2O | Luke's Progress | IVUN News Now 12 Pages
Reimbursement for Ventilator Equipment: How It Works | Phrenic Nerve Pacing | Advocacy/Policy Websites
Ninth International Conference on Noninvasive Ventilation: "From the ICU to Home"
Journal Articles | Calendar 2003 | In Memoriam | The Research Fund
Potpourri: ALS Sanctuary; ALS caregiver's guide; Kaleidoscope; Non-Invasive Respiratory Support guide; DMD Pioneers
2002
Winter 2002, Vol. 16, No. 4
Breathing and Pregnancy | Managing Noninvasive Ventilation: A Portuguese Experience
My Experience with Noninvasive Ventilation | Body Brace | Interfaces, Ventilators, and Supplies
Fall 2002, Vol. 16, No. 3
On the Road with the Newport HT50 Ventilator
Home Mechanical Ventilation in Taiwan | Charcot-Marie-Tooth: A "Breath Taking" Reality | Homebound Restriction Eased
Potpourri: MDA Clinical-Research Chat on Respiratory-Ventilation Issues; Noninvasive Ventilation by John Bach; MiCASSA
Summer 2002, Vol. 16, No. 2
Long-Term Ventilation: The Jerusalem Experience | From Negative to Positive | David Jayne Goes to Washington
Congestive Heart Failure, OSA, and BiPAP | Medicaid and People with Disabilities: Living in the Community
New Interfaces | Equipment News
Potpourri: Direct Relief International; Old Respiratory Equipment; The Bryan Pratt Autobiography; Letters of Medical Necessity
Spring 2002, Vol. 16, No. 1
Living with SMA in Hong Kong | Ventilator Users and Health-Related Quality of Life
Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise | NCAHB Update
More on Sleep Studies | Ventilator Users, Assisted Living, and Nursing Homes
Potpourri: Traveling with a Ventilator Post September 11; The Virtual Museum of the Iron Lung; Muscular Dystrophy Epidemiology at the CDC