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What's New
The Summer issue of Ventilator-Assisted Living (Vol. 22, No. 2) has been mailed to all IVUN Members. Learn about HMV in Brazil and meet vent user Mark Siegel.
June Membership renewal notices have been mailed. Not a Member? Join IVUN.
EDUCATION
- Ventilator-Assisted Living
Past Issues, Listed by Topic
Past Issues, Listed by Date - Information about Ventilator-Assisted Living
- Home Ventilator Guide
| The work of IVUN is sponsored in part by |
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| The work of IVUN is supported in part by |
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Want to be a sponsor? Contact director@post-polio.org.
Past Issues (listed by issue and date) of Ventilator-Assisted Living©
ISSN 1066-534X (formerly IVUN News)
©Copyright through 2007 Post-Polio Health International
Past issues from 1998-2007 (Vol. 12-21) are available for $1.25 per issue. Contact us at 314-534-0475 or info@ventusers.org for more information on ordering individual issues.
A complete set of all issues from 1998-2007 (Vols. 12-21)
is available for $40. Add $10 for international orders.
To view documents in PDF format, Adobe® Acrobat® Reader needs to be installed on your computer. Click here for a free download.
2007
Fall 2007, Vol. 21, No. 3
Renting your vent? What would you do if you suddenly owned it?
A ventilator user's impressions of a recent hmv meeting
Celebrating its 20th year, IVUN announces its new website
Summer 2007, Vol. 21, No. 2
Safety Issue Generates Practical Solutions
Social and Ethical Implications of Long-term Ventilation for Men with Muscular Dystrophy
Two survivors present solutions for addressing muscle respiratory weakness due to prior polio
Recent readers’ survey. A few things we learned
Spring 2007, Vol. 21, No. 1
How My Vent and I Underwent Radiation Therapy
Update: Medicare Reimbursement Changes Affect Vent Users
Independence with a Ventilator: An Interview with Mark Boatman
2007 Camps for Ventilator-Assisted Children; 2007 Conferences
Noninvasive and Home Mechanical Ventilation: ICU and Beyond
2006
Winter 2006, Vol. 20, No. 4
The Research Fund: Final Report
Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis
Pennsylvania Vent Camp at Camp Victory
IVUN Joins Those Studying Sexual Activity and Chronic Illness
Networking: DPS System Article Clarified
IVUN's 2007 Resource Directory for Ventilator-Assisted Living is now online
Fall 2006, Vol. 20, No. 3
The Latest Facts about the Diaphragm Pacing Stimulation (DPS) System
IVUN Members Consider Telehealth
Request for Increased Funding for Veterans Using Home Ventilators
IVUN Membership Benefits and Form; Get Ready for Another Flu Season
Summer 2006, Vol. 20, No. 2
Maximizing Your Support and Independence through Attendant Care
IVUN's New Medical Advisory Committee Shares Its Views
Enjoying the Arts: Expect the Unexpected
Update on the Ventilator Users' Medical Emergency (VUME) Project
Networking: Ventilator Donation to Thai Hospital; Registries; Calendar 2006
Reminder: The Research Fund Proposal Deadline
Spring 2006, Vol. 20, No. 1
Escaping Hurricanes Katrina and Rita
Medicare Changes Payment for RADs
Ventilator Users' Medical Emergency (VUME) Project Under Way
An Alternative to a Trach Tube
New Equipment: ComfortLite™ 2 Nasal Mask; DC to DC Power Source for Pulmonetic Systems Ventilators
2005
Winter 2005, Vol. 19, No. 4
Adopting Children with Special Needs
Current Threats to Ventilator Users in Cost-Cutting Proposals from Medicaid and Other Medical Insurance: A Resolution
Funds to Address Problems Vent Users Face during Medical Emergencies
Call for Proposals for a 2007 Award of $25,000 (The Research Fund)
The Research Fund: Preliminary Report
Earlier Use of Noninvasive Ventilation May Prolong Survival
New Masks
Home Ventilator Guide
Fischer Steps Down
In Memoriam: Edward Anthony "Tony" Oppenheimer, MD, FCCP
Fall 2005, Vol. 19, No. 3
Hypoventilation? Obstructive Sleep Apnea? Different Tests, Different Treatment
Swedish Respiratory Unit for Ventilator-Assisted Children
Masks, Part II: Noninvasive Interfaces
Equipment: PLV Continuum by Respironics, Inc.
Travel: Special Federal Aviation Regulation (SFAR)
Summer 2005, Vol. 19, No. 2
Living on Your Own in College and Beyond
The Experiences of Families with Ventilator-Assisted Children at Home
Masks: Obtaining a Good Fit, Part I
Equipment and Interfaces
Spring 2005, Vol. 19, No. 1
2005 Camps for Ventilator-Assisted Children
Extra Security During Emergencies
Life as a Teenager ... with a Ventilator
The Development of RespiteMatch.com
Potpourri: Amyotrophic Lateral Sclerosis; Muscular Dystrophy; Polio; Spinal Muscular Atrophy
IVUN Equipment Exchange: PLV-100s Donated
An Oral Mask Alternative: The Oracle
2004
Winter 2004, Vol. 18, No. 4
The Ventilator Boat: Will It Float?
PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation
The Pneumobelt: Part of My Noninvasive Ventilation System
Planning for Elective Surgery
Home Care for Children in Holland: The Story of Anouk
Potpourri: John J. Downes, MD, FCCP; Over 5 Years Club; Virginia Nelson, MD; CILB (Citizens for Independence in Living and Breathing); Paul Longmore, PhD
Strategies for Living Well: Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living
New Interfaces: Nasal Pillows
New Equipment
Fall 2004, Vol. 18, No. 3
Vent Kids of Alabama Support Group
Sidebar: "Care of the child with a chronic tracheostomy"
From independent living to a nursing home ... and back?
Sidebar: Respiratory care and Duchenne muscular dystrophy
Ventilator Users in the Air: Traveling to Japan
Japanese Ventilator Users Network's Successful Symposia
New Interfaces: Nasal Pillows
New Equipment
Summer 2004, Vol. 18, No. 2
Quality of Life: Profiles of Living with ALS
Sidebars:
What is ALS?
More about ALS
Home Mechanical Ventilation in Brazil Revisited
Homebound Exception Demonstration
Retrofitting Ventilators for Power Chairs
Preparing for a Respiratory Emergency
In Memoriam: Ira Holland, 1939-2004
Respironics and IVUN's Ventilatory Equipment Exchange
Potpourri: ResLink from ResMed; OSA/CPAP users; Medicaid Waivers; Toll-Free Hotline for Airline Disability-Related Problems; The Association for Respiratory Technicians and Physiologists; Chin-Neck Bandage; Rolling On: The Story of the Amazing Gary McPherson
Letter to the Editor from Jeannette Hoitt, PhD and Robert Banzett, PhD, University of Arizona
Spring 2004, Vol. 18, No. 1
Passy-Muir Speaking Valve: Improving Voice in Children and So Much More
Sidebar: How the Passy-Muir Valve Works
Ventilator Backup: Are You Prepared?
Aging and Respiratory Function
Transition: From Middle Age to Elderly
Arizona Respiratory Center Receives Grant
ALS Respiratory Care Resources
IVUN Ventilatory Equipment Exchange
New Interface: The ComfortLite from Respironics
2004 Camps for Ventilator-Assisted Children
2003
Winter 2003, Vol. 17, No. 4
Respiratory Effects of Common Medications
Noninvasive Ventilation: A History of My Life
Ninth International Noninvasive Ventilation Conference: "From the ICU to Home," October 23-25, 2003, Orlando, Florida
Intimacy and Sexuality and Long-term Mechanical Ventilation: Breathing Intimacy into Our Lives
Assisted Living for Ventilator Users
Sidebars: No More Inner Cannulas, Talking with Tracheostomy Ventilation
New Nasal Masks: Mirage Activa, ComfortGel, DeVilbiss FlexAire, Fisher & Paykel's HC405
Fall 2003, Vol. 17, No. 3
Noninvasive to Trach Ventilation ... and Back Again
Traveling with Technology-Assisted Children
Air Travel and Ventilator Users
Journal Articles
New Equipment & Interfaces: Nippy 3; ComfortFull Full Face Mask, V.I.P. 7500 Series Oro-Nasal Vmask, ALIZES nasal CPAP/bilevel mask
Trach Necklaces and Scarves
Summer 2003, Vol. 17, No. 2
Welcome to Ventilator-Assisted Living
Getting Used to Noninvasive Bilevel Pressure Ventilation
Adolescence: Transitioning from Pediatric to Adult Care
DMD Pioneers
Happily Using Bilevel Pressure Ventilation
Home Mechanical Ventilation in the Netherlands
Potpourri: Equipment Problems; Living with ALS
Letters to the Editor
Spring 2003, Vol. 17, No. 1
A Classic Case of Hypoventilation
Which Ventilator? Who Decides?
Home or Institution?
Reimbursement for Ventilator Equipment: How It Works
Phrenic Nerve Pacing
Advocacy/Policy Websites
Ninth International Conference on Noninvasive Ventilation: "From the ICU to Home"
Journal Articles
Calendar 2003
In Memoriam
The Research Fund
Potpourri: ALS Sanctuary; ALS caregiver's guide; Kaleidoscope; Non-Invasive Respiratory Support guide; DMD Pioneers
2002
Winter 2002, Vol. 16, No. 4
Managing Noninvasive Ventilation: A Portuguese Experience
My Experience with Noninvasive Ventilation
Interfaces, Ventilators, and Supplies
Fall 2002, Vol. 16, No. 3
On the Road with the Newport HT50 Ventilator
Home Mechanical Ventilation in Taiwan
Charcot-Marie-Tooth: A "Breath Taking" Reality
Homebound Restriction Eased
Potpourri: MDA Clinical-Research Chat on Respiratory-Ventilation Issues; Noninvasive Ventilation by John Bach; MiCASSA
Summer 2002, Vol. 16, No. 2
Long-Term Ventilation: The Jerusalem Experience
David Jayne Goes to Washington
Congestive Heart Failure, OSA, and BiPAP
Medicaid and People with Disabilities: Living in the Community
New Interfaces
Equipment News
Potpourri: Direct Relief International; Old Respiratory Equipment; The Bryan Pratt Autobiography; Letters of Medical Necessity
Spring 2002, Vol. 16, No. 1
Living with SMA in Hong Kong
Ventilator Users and Health-Related Quality of Life
Airway Clearance Therapy for Neuromuscular Patients with Respiratory Compromise
NCAHB Update
More on Sleep Studies
Ventilator Users, Assisted Living, and Nursing Homes
Potpourri: Traveling with a Ventilator Post September 11; The Virtual Museum of the Iron Lung; Muscular Dystrophy Epidemiology at the CDC
2002 Camps for Ventilator-Assisted Children