Ventilator-Assisted Living©

Spring 2004, Vol. 18, No. 1

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Arizona Respiratory Center Receives Grant

John D. Mark, MD, Director, Southwest Ventilation Program, University of Arizona Health Sciences Center, Tucson, Arizona

The Arizona Respiratory Center’s Southwest Ventilation Program received a $25,000 Quality of Life Grant from the Christopher Reeve Paralysis Foundation (CRPF) in late 2003.

The Southwest Ventilation Program (SVP) is a regional initiative to improve the health and quality of life of adults and children with complex respiratory and neuromuscular conditions. The SVP provides comprehensive family-centered care to people in southwest Arizona who require assisted ventilation to maintain normal breathing.

The grant supports the creation of a library of patient, family and professional educational materials in multiple formats. SVP is producing treatment protocols and guidelines for professionals and for families, such as educational booklets on complex topics including suctioning, noninvasive bilevel ventilation at home and use of the home ventilator via tracheostomy. “How to” tip sheets for such procedures as augmented cough, breathing stacking and airway clearance techniques will be provided. SVP is also developing videos, CDs and DVDs for training health professionals and for patient use.

The Arizona Respiratory Center (ARC) was designated the first Center of Excellence in the University of Arizona College of Medicine in 1971. This internationally known Center combines research, clinical care and training in the care of children and adults with respiratory problems. The Southwest Ventilation Program began in the fall of 2003 and has served 50 people.


ALS Respiratory Care Resources

Completing the Continuum of ALS Care: A Consensus Document. “Promoting Excellence in End-of-Life Care” is a national program of The Robert Wood Johnson Foundation charged with the task of improving the end of life for dying patients. The program recognized ALS as a disease that requires special attention at the end of life. Working with The ALS Association (ALSA), an ALS Peer Workgroup was charged with identifying the current state of end-of-life care for people with ALS and establishing recommendations on how to improve the end of life for individuals and their families.

Primary authors of this report (January 2004) are Hiroshi Mitsumoto, MD, DmedSc, ALS Peer Workgroup Chair and The ALS Peer Workgroup Members. The Executive Summary and Report to the Field are available in HTML or PDF (44 pgs.) at www.promoting excellence.org/als/als_report.

Douglas McKim, MD, FCCP, and his team at The Rehabilitation Centre, Ottawa Hospital, Canada, developed respiratory protocols for treating people with ALS and other neuromuscular diseases. (www.rehab.on.ca/mobile/present_e.html; click on Therapy/Treatment, then select from the respiratory protocols.) Also on CD-ROM.

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