Ventilator-Assisted Living©

Summer 2007, Vol. 21, No. 2

ISSN 1066-534X

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Read selected articles from this issue ...

cover of the summer 2007 issue of Ventilator-Assisted LivingPages 1 and 3
Safety Issue Generates Practical Solutions
Sandra Stuban, a registered nurse and retired lieutenant colonel in the Army Nurse Corps, challenged vent users on Jim Lubin’s online discussion list to “help make us safer.” Stuban, a certified ICU nurse, compiled the information she received to benefit our readers. Diagnosed with ALS in 1995, Sandra used a BiPAP® around the clock for four years but has used the LP10 ventilator 24/7 since 2001.

Pages 4 and 5
Social and Ethical Implications of Long-term Ventilation for Men with Muscular Dystrophy
Researcher Barbara E. Gibson, PhD, PT, explored the lives of adult vent users with Duchenne muscular dystrophy (DMD). Their candid responses resulted in recommendations that would benefit not only men with DMD, but all vent users.

Pages 6 and 7
Polio survivors Rick Van Der Linden and Deborah Cunningham present their solutions for addressing muscle respiratory weakness due to prior polio. Cunningham, a vent user for decades, is thrilled with her new custom mask, and Van Der Linden relates his transformation of attitude and of equipment.

Pages 8-10
IVUN Information Specialist, Judith R. Fischer, and I review disability and industry press releases, online discussion groups, email list servs and your messages to info@ventusers.org to keep you up-to-date on products and resources. Know something we should pass along in “From Around the Network”? Send it to us.

Pages 11 and 12
Thanks to those of you who completed our recent readers’ survey. Check out page 11 for a few things we learned; additional suggestions will be evident in future issues.

Our work is supported by your Memberships and on page 11, we list our new Membership levels and fees effective July 1, 2007, representing our first increase in four years. Costs of creating and printing information have slowly crept upwards. Postage rates, as you know, have increased once again.

Our sponsors’ contributions are crucial to our work. This issue we welcome a new sponsor – Kindred Healthcare (www.kindredhealthcare.com).

–Joan L. Headley, Executive Director of IVUN

Complete issue (pdf)

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