Ventilator-Assisted Living©

Fall 2007, Vol. 21, No. 3

ISSN 1066-534X

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Read selected articles from this issue ...

cover of the fall 2007 issue of Ventilator-Assisted LivingPages 1 and 3
Air Travel to India
Padma Varanasi of Pasadena, California, writes about the trip she orchestrated from the US to India for her parents. Her father, who has ALS, uses trach positive pressure ventilation and a PEG tube. The article is a thank you to all who helped her make the arrangements, and an encouragement to others who are reluctant to try post-9/11 travel.

Pages 4 through 7
Renting your vent? What would you do if you suddenly owned it?
IVUN is celebrating its 20th anniversary this year, and we have many long-time Members who let us know what’s happening in their world. IVUN heard from several ventilator users who ran into obstacles when their insurance companies bought their vents. Alan Fiala’s story, which may be unique, points out the frustrations of maintaining ventilatory equipment. This article, too, is meant to thank those who help resolve problems of individual vent users and to enlighten those who can do something about the confusion.

Pages 8-10
IVUN Information Specialist Judith R. Fischer once again collected the latest news about equipment, the manufacturers, and reference materials for health professionals and ventilator users.

Maria Mastracchio, a ventilator user from Quebec, comments on her impressions of a recent home mechanical ventilation meeting, which is followed by the “Calendar” of future meetings.

Having a meeting? Send the details to info@ventusers.org. We will also post it on our new website – www.ventusers.org.

Pages 11 and 12
Celebrating its 20th year, IVUN announces its new website – www.ventusers.org

IVUN is a Membership organization whose work is underwritten by its dedicated supporters acknowledged on page 12. We invite you to check out www.ventusers.org and become a Member.

Take Charge, Not Chances is the descriptive name of the portfolio of four documents developed by the Ventilator Users’ Medical Emergency (VUME) Project. The documents will be available soon online at www.ventusers.org at the bright red and blue Take Charge, Not Chances logo. Ventilator users who do not have access to the Internet may request a copy by calling 314-534-0475 or mailing to IVUN, 4207 Lindell Blvd, #110, Saint Louis, MO 63108-2930.

–Joan L. Headley, Executive Director of IVUN

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