Ventilator-Assisted Living©

Winter 2008, Vol. 22, No. 4

ISSN 1066-534X

IVUN's bi-monthly newsletter is a benefit of Membership.
Click here to become a Member or Renew Now!
Or, download a PDF order form, or call 314-534-0475.

Read selected articles ...cover of this issue of Ventilator-Assisted Living

Crafting in Cardboard by Lille Troelstrup features the
creative solutions Adaptive Design Association (ADA), a New York based non-profit, offers children with disabilities and their parents. Want to know more? Connect with Troelstrup, who is a great ambassador for ADA.

The article, Ventilator Users and Meditation by Adolf Ratzka, PhD, Stockholm, Sweden, is not only an informative piece about meditation and its benefits, but a reminder that ventilator users can be very active and enjoy life. This fact is often lost when we focus only on the medical and the mechanical.

Experienced pulmonologists Drs. Lechtzin and Benditt share their views on Bilevel or volume-cycled ventilation? – a question often discussed by ventilator users.

This issue’s advocacy page provides updates on the ADA, the UN Convention on the Rights of Persons with Disabilities, and the Homebound Demonstration Project fought for by ventilator user David Jayne.

New products, information for veterans, good news about Take Charge, Not Chances, and honoring Dr. Forrest Bird are part of Judith R. Fischer's From Around the Network.

IVUN continues to receive questions about interfaces and page 9 includes another “My Favorite Mask.” Take a few minutes and send details about your favorite mask to info@ventusers,org.

It’s time to think about 2009. Check out the dates and places and attend a meeting to learn more about home mechanical ventilation.

Post-Polio Health International selected its fifth Research Fund recipient this fall. Remember the funds are also available for research into respiratory issues related to neuromuscular disease. Next call for proposals: fall of 2009.

We wish our sponsors, supporters and Members a peaceful holiday season and good wishes for 2009.

–Joan L. Headley, Executive Director

 

Back to top