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International Ventilator Users Network's mission
is to enhance the lives and independence of
home ventilator users and polio survivors through
education, advocacy, research and networking.
Want to Tell Your Story? Do you use an iron lung?
StoryCorps (www.storycorps.org), the oral history and public radio project, has a mission to record the stories of everyday Americans across the country and to archive them in the Library of Congress for future generations. We would love to invite you to record your story with us. Contact Joan L. Headley at info@ventusers.org for details.
Explore information for home ventilator users, families and health professionals.
Access to IVUN publications – Ventilator-Assisted Living, Information about Ventilator-Assisted Living, Home Ventilator Guide (updated 8-19-08)
CD of Program Booklets Now Available: Daily program booklets (Thursday–60 pgs; Friday–98 pgs; Saturday–70 pgs) from PHI’s 10th International Conference: Living with Polio in the 21st Century are now available. In PDF format on a single CD, the files contain abstracts and handouts.
Order form & domestic pricing information. Print and mail.
Order form & international pricing information. Print and mail
Investigate and actively support current issues affecting the lives of home ventilator users.
Support IVUN initiatives, other advocacy organizations and connect with other advocacy resources.
New Air Carriers Access Act and important information about flying with breathing machine. Review the FAQs from the Department of Transportation.
Vent users needing vents during flight denied access on AirTran. READ MORE ...
Learn about The Research Fund of PHI/IVUN and opportunities to participate in research.
IVUN's Fifth Research Grant: Call for Proposals. Are you a researcher with innovative ideas?
Find health professionals, support groups; connect at conferences; receive and/or offer help.
Link to 500 entries in IVUN's Resource Directory for Ventilator-Assisted Living; find out about home ventilator users meetings around the world, email requests or offers of help to other ventilator users.
This site updated 7-1-09
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